Research into the experience of dementia: methodological and ethical challenges

Conducting research in the field of dementia care can be fraught with moral and ethical dilemmas, particularly with regard to consent and capacity. These issues apply to all aspects of the research process and are an important consideration for the research to be considered ethical and of relevance to the future of dementia care. This article considers the importance of ethical issues in research involving people with dementia, with specific regard to consent and capacity and on minimising harm. Methodological suggestions are proposed which may assist in ensuring research is ethical and maximise participation of people with dementia. In conclusion, it is argued that consideration of these factors at a methodological level can increase the potential for engagement without compromising the wellbeing, dignity and protection of the person with dementia.